Mike had been trying to drink the coffee in this picture all day, and finally got to it around 8 PM!Our pediatrician was kind enough to call James's prescriptions into the pharmacy so we didn't have to make separate drop off and pick up trips (or have a long wait with the babies). I called the pharmacy around 4:15 PM, and discovered that they couldn't actually fill his prescriptions (they don't do compounding, and they hadn't bothered to let the doctor's office know that when the prescription was first sent over). Ugh!! (Note to discharge doctor: might be nice to warn people about that kind of thing, especially when the medicine is time-sensitive, like say, a flu treatment.)
The lady at the pediatrician's office was awesome. She called the local compounding pharmacy but they had already closed, so she called several different places before finding one who could get us the meds tonight. Bless you, Martha at Chapel Hill Pediatrics!
And the pharmacist she found was equally wonderful. They had a problem with the insurance in the computer (sounded like some confusion about twins), and he actually called someone up and stayed on the phone with them for probably fifteen minutes getting it straightened out. And he compounded the medicines so that they were both the same easy-to-remember dose. (They're also cherry flavored, though James won't get to appreciate that, since they're going in his feeding tube for now.) So if you're looking for a pharmacist in Chapel Hill, Dave at Harris Teeter North is The Man.
It was no fun to have to have those extra hoops to jump through today, but we're grateful that these amazing folks came through for us in a pinch.
(As you may have noticed, I don't usually put people's names other than family members in the blog -- I figure people shouldn't have to be identified on the Internet if they don't want to be -- but in this case it seemed appropriate.)
And we're also grateful for our wonderful friends Y & J, who not only walked our dog but brought us dinner as well (which we finally got around to eating after 10 PM!)
We are not so appreciative of whoever gave the home health nurse's company the wrong diagnosis for James. The nurse is the same one who came to see Matthew, so she knew immediately that it was a mistake. It's a bit of a mystery to me how UNC can excel at so many aspects of patient care yet manage to make a bit of a mess of things after discharge.
Jamesie has still been spitting up/throwing up some after eating, but nothing quite as dramatic as this morning. (Our pediatrician noted that Tamiflu can sometimes cause nausea, and the doc at the NICU suggested that he might be just being moved around more than he's used to, or that it's otherwise related to getting used to his new surroundings. Neither seemed especially concerned about it at this point.) Either way, we hope tomorrow goes better! And wish us luck for sleeping tonight!
PS: And thanks to you all for your support and encouragement -- we especially needed it today!!
2 comments:
The routine will come! Everyone will get settled in! And Grandma is coming this weekend so try to get some rest!!!!! I know, you are wondering what that is!!!
Yea, I know what you mean about the medical profession that is why I carry my medical records whereever I go! The nurse in Pittsburgh says, you are always so organized, I did not tell them why I had to be!!!!! Duh!!!
Anyways, through it all, you seem to finding true caring people and now you know where to go!
Many blessings to you and yours and know we are still keeping ALL of you in our prayers!!!
Love Auntie Ann
Emily and I have both been thinking a lot about you two and the twins. We know you are dealing with a lot and we feel for you. We also know you are so totally up for the challenge, even if you don't always feel like you are.
Your problems after leaving the hospital sounded just a bit familiar. I suspect there is a wide-spread disconnect between the excellent care that doctors and nurses give in hospitals and the fairly incompetent handling of administrative things, especially after leaving the hospital. When I went to Florida to take care of Abbie after she had her appendix removed the hospital people were wonderful. When she was discharged they gave us a bunch of papers with instructions and contact numbers. We had some questions about some problems she was having, so we tried calling. Not one of the phone numbers on the forms they had given us was correct. It took several hours and a bunch of calls to finally reach a nurse who could answer our questions. When we finally got to the nurse, she was great. But the administrative people obstructing us along the way were just simply incompetent and uncaring.
Hang in there. You are doing great.
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